Hemophagocytic Lymphohistiocytosis (HLH) is a life-threatening immunodeficiency disorder. While rare, HLH is rapidly fatal. However, with prompt and accurate diagnosis and timely treatment, a cure is possible. Unfortunately, few physicians are knowledgeable about HLH, and it is often misdiagnosed or diagnosed too late. Without access to effective treatment, primarily bone marrow transplantation, most patients with HLH die.
The clinical and research pioneers in the Cancer and Blood Diseases Institute at Cincinnati Children’s are committed to improving outcomes for children with HLH. As the most experienced facility in the nation in treating the disease, Cincinnati Children’s has assembled a team of researchers, physicians and families who have faced HLH to create the HLH Center of Excellence at Cincinnati Children’s. The center focuses on four core priorities: research, clinical care, education and family support. The discovery, innovation and improved care that are developing out of the center will save lives and change the outcome for children and families facing this devastating disease.
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