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Welcome to the Turner Syndrome Riley Run!
By making a gift to my Giving Hope online fundraiser, you are helping to bring hope and healing to girls with Turner Syndrome and families in our community, across the country and around the world. This event is specifically fundraising for the Cincinnatus Foundation for Research and Education on Turner Syndrome.

Our daughter, Riley, was diagnosed with Turner Syndrome in 2012 and has received the best care available due to the outstanding Turner Syndrome Clinic at Children's Hospital. As we sought out information we came to realize that we were so lucky to be in close proximity to CCHMC and extremely fortunate to benefit from the great experience and research that was happening here. This is our small way to give back. February is Turner Syndrome Awareness Month. We are pledging to run a 5K everyday in February to help raise awareness.

Our goal is two-fold;
1. Raise awareness of Turner Syndrome and the 1 in 2000 girls who live with it.
2. Raise funds to support the Cincinnatus Foundation for Research and Education on Turner Syndrome, right here at CCHMC.

Would you please help us spread the word? Send this link to your friends and family. 1 in 2000 girls have Turner Syndrome, chances are you know at least one beautiful TS butterfly ;)

Would you like to run along? Please post your runs here:, we will tally the total miles run in February!

Giving Hope, Cincinnati Children's community philanthropy program, is a great way to get involved and really make a difference for sick and injured kids. As a nonprofit hospital and medical center, Cincinnati Children's depends largely on support from the community. Together, we will change the outcome!

Riley and the Turner Syndrome Riley Run Team



2/18/2016Riley, You're a beautiful and amazing young woman! Hugs to you!! JaimeJaime Schaeffer
2/27/2015Riley, I applaud your effort and am very proud of you! Love you Cousin Kay.Rhonda Bishop
2/14/2015So proud of Riley after seeing her on the news. You were so poised and eloquent! Raising awareness for all of our wonderful Turner syndrome patients and families will lead to more research, education, and better health outcomes. Keep it up! Iris Gutmark-Little, MDIris Gutmark-Little
2/3/2015Thank u for the inspiration I am doing the same in the UK!
2/2/2015You are one special little blessing. Love you so much--wish we were closer. Hugs and Kisses.Cathy Ware
2/1/2015The Bastin family wishes you all Good Luck on reaching your goal and keep up the awesome work!!!Jennifer Bastin
2/3/2014It was a pleasure to meet up with Riley and her parents at WLWT5 on Saturday. Riley did great in front of the camera! It is so encouraging to see the dedication from families like the Roberts family, to help awareness, research and education related to Turner syndrome. We have an exciting group of collaborators at CCHMC and the TS Center, and in the upcoming years much good will come out of our joint efforts. Thanks to all who have donated so far to Riley's Run. Philippe Backeljauw, MD Director, Turner Syndrome Center of CincinnatiPhilippe Backeljauw
1/25/2014What an awesome idea! My daughter is 24 now and we are ever so grateful to have the TS clinic at Childrens. Kydos to you and i know you love and cherish your TS daughter as much as i do <3Jennifer Morris
1/22/2014Wanted to post a note of appreciation and thanks for all of you. We start running in 10 days!! You are amazing. Katie
1/15/2014Wow!! As Turner Clinic Coordinator here at Childrens', I hope you know how much this means to our program.Lori Casnellie RN
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