Welcome to the Turner Syndrome Riley Run!
By making a gift to my Giving Hope online fundraiser, you are helping to bring hope and healing to girls with Turner Syndrome and families in our community, across the country and around the world. This event is specifically fundraising for the Cincinnatus Foundation for Research and Education on Turner Syndrome.
Our daughter, Riley, was diagnosed with Turner Syndrome in 2012 and has received the best care available due to the outstanding Turner Syndrome Clinic at Children's Hospital. As we sought out information we came to realize that we were so lucky to be in close proximity to CCHMC and extremely fortunate to benefit from the great experience and research that was happening here. This is our small way to give back. February is Turner Syndrome Awareness Month. We are pledging to run a 5K everyday in February to help raise awareness.
Our goal is two-fold;
1. Raise awareness of Turner Syndrome and the 1 in 2000 girls who live with it.
2. Raise funds to support the Cincinnatus Foundation for Research and Education on Turner Syndrome, right here at CCHMC.
Would you please help us spread the word? Send this link to your friends and family. 1 in 2000 girls have Turner Syndrome, chances are you know at least one beautiful TS butterfly ;)
Would you like to run along? Please post your runs here:https://www.facebook.com/TSRileyRun, we will tally the total miles run in February!
Giving Hope, Cincinnati Children's community philanthropy program, is a great way to get involved and really make a difference for sick and injured kids. As a nonprofit hospital and medical center, Cincinnati Children's depends largely on support from the community. Together, we will change the outcome!
Riley and the Turner Syndrome Riley Run Team
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