Skip Navigation Links
Login
Welcome to the Turner Syndrome 5K-A-Day Riley Run!

By making a gift to my Giving Hope online fundraiser, you are helping to bring hope and healing to girls with Turner Syndrome and families in our community, across the country and around the world. This event is specifically fundraising for the Cincinnatus Foundation for Research and Education on Turner Syndrome.

Our daughter, Riley, was diagnosed with Turner Syndrome in 2012 and has received the best care available due to the outstanding Turner Syndrome Clinic at Children's Hospital. As we sought out information we came to realize that we were so lucky to be in close proximity to CCHMC and extremely fortunate to benefit from the great experience and research that was happening here. This is our small way to give back. February is Turner Syndrome Awareness Month. We are pledging to run a 5K everyday in February to help raise awareness.

Our goal is two-fold;
1. Raise awareness of Turner Syndrome and the 1 in 2000 girls who live with it.
2. Raise funds to support the Cincinnatus Foundation for Research and Education on Turner Syndrome, right here at CCHMC.

Would you please help us spread the word? Send this link to your friends and family. 1 in 2000 girls have Turner Syndrome, chances are you know at least one beautiful TS butterfly ;)

Would you like to run along? Please post your runs here:https://www.facebook.com/TSRileyRun, we will tally the total miles run in February!


Giving Hope, Cincinnati Children's community philanthropy program, is a great way to get involved and really make a difference for sick and injured kids. As a nonprofit hospital and medical center, Cincinnati Children's depends largely on support from the community. Together, we will change the outcome!

Thank you!
- Katie and Harold
#TurnerUp
#TSRileyRun
THANK YOU FOR SUPPORTING THE TURNER SYNDROME 5K-A-Day Riley Run

loading...

loading...

Pause
COMMENTS
DateMessageAuthor
2/3/2014It was a pleasure to meet up with Riley and her parents at WLWT5 on Saturday. Riley did great in front of the camera! It is so encouraging to see the dedication from families like the Roberts family, to help awareness, research and education related to Turner syndrome. We have an exciting group of collaborators at CCHMC and the TS Center, and in the upcoming years much good will come out of our joint efforts. Thanks to all who have donated so far to Riley's Run. Philippe Backeljauw, MD Director, Turner Syndrome Center of CincinnatiPhilippe Backeljauw
1/25/2014What an awesome idea! My daughter is 24 now and we are ever so grateful to have the TS clinic at Childrens. Kydos to you and i know you love and cherish your TS daughter as much as i do <3Jennifer Morris
1/22/2014Wanted to post a note of appreciation and thanks for all of you. We start running in 10 days!! You are amazing. Katie
1/15/2014Wow!! As Turner Clinic Coordinator here at Childrens', I hope you know how much this means to our program.Lori Casnellie RN
1/6/2014You all are amazing. We honestly can't believe the response. Riley is certainly feeling the love. We haven't seen some of you in so long and yet there you are (tear). Because of your efforts, donations, shares... we have surpassed a goal yet again. We've also had progress on the awareness front, several people inquiring about TS and wondering if someone close to them might have it. xoxo share the loveKatie
1/6/2014Riley, we are very excited to see that so many people share our love for you and want to help. We are proud of you and we know that you will overcome any setbacks to achieve great success in your future. You're a terrific young lady !!!MeeMaw & PeePaw
1/5/2014All I can say is wow! Riley gets so excited to see each and every one of your names! So, who thinks we can get to $5000 by the end of February? Thanks to each of you for the outpouring of support for Riley and all of her TS sisters. Spread the word about Turner Syndrome! Visit http://turnersyndrome.org/ to learn more. xoxoKatie Roberts
1/5/2014Riley, looks like you need to raise your goal! Love you, Cousin KayRhonda Bishop
1/4/2014Day two was even more amazing. Riley is checking all day long and loves to see her family and friends names pop up. I am humbled by you all. Thank you. Four weeks from today is our first run, and while i'm really hoping the weather is slightly better, I am looking forward to it. Yes, it will be cold, yes it will be hard, but we have a secret in getting it done- Riley. She inspires us everyday- what an amazing girl with unbelievable talents. She has has so many challenges in life but she smiles and preservers. She is my hero.Katie Roberts
1/3/2014Great job Riley! Love you,Aunt Mayme
This board has 14 messages on 2 pages < 1 2 >

All donations to this web page are direct contributions to Cincinnati Children's.


The user(s) of this web page assume sole responsibility for the content he/she posts on this page including but not limited to photos, text, graphics and personal profiles. Information, ideas or opinions posted by users of the web page do not necessarily reflect the views of Cincinnati Children’s and Cincinnati Children’s does not take responsibility for the accuracy of any information, ideas or opinions posted by users. Cincinnati Children’s may delete any content that we, in our sole and absolute discretion, believe is inappropriate.

slideshow

 


Goal:$10,000.00
Raised:$4,245.00

Share This Page